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Internet Support Groups for Ehlers-Danlos Syndrome EDS Today now offers a Support Group Bulletin Board. This new page is dedicated to providing local support groups a means to recruit volunteers/members and announce meetings. If you have a group that is not listed on this page, please email EDS Today with the contact information and website. Groups for Specific Age GroupsAdultsEDS 50 Plus - "This mailing list is specifically geared for people with Ehlers-Danlos Syndrome who are 50 years and older to share information and to provide and receive emotional support." This group was formed on December 28, 2000 and had 39 members as of July 20, 2004. KidsCEDA Kids - "This list is for young people with Ehlers-Danlos syndrome, here you can talk about EDS, coping with it, how to manage it, whatever you wish!" This group was formed on December 16, 2000 and had 31 members as of July 20, 2004. TeensCEDA Teens - "This is a list for teenagers and young adults who have Ehlers-Danlos syndrome. Join us, and talk about EDS, life, coping, frustrations, share a joke or two, poems, stories, whatever you like! All are welcome - although no parents is the rule. Lets just talk!" This group was formed on March 28, 2001 and had 30 members as of July 20, 2004. EDS Teen - "If you are younger then 19 and are trying to deal with EDS come in and talk to us.....Make some new friends, or just chat to new people." This group was formed on April 24, 2001 and had 17 members as of July 20, 2004. We Can Survive EDS MSN Site - "Ehlers-Danlos Syndrome (EDS) is the name given to a group of heritable connective tissue disorders. EDS can affect the skin, ligaments, and internal organs. This group is intended as an information source and support group for teenagers suffering from Ehlers-Danlos Syndrome." We Can Survive EDS Yahoogroup - "Ehlers-Danlos Syndrome (EDS) is the name given to a group of heritable connective tissue disorders. EDS can affect the skin, ligaments, and internal organs. This group was created by a teen and is intended as an information source and support group for teenagers suffering from Ehlers-Danlos Syndrome." This group was formed on January 26, 2003 and had 13 members as of July 20, 2004. EDS Young People Support Group - "This is a place where young people who are worried about being diagnosed with an invisible disorder such as Ehlers Danlos Syndrome or Hypermobility Syndrome can air their views and frustrations, and also to share idea's and best practices." This group was formed on November 4, 2004 and had 1 member as of December 17, 2004. EDS Young People Support Group 2 - "This is a place where young people who are worried about being diagnosed with an invisible disorder such as Ehlers Danlos Syndrome or Hypermobility Syndrome can air their views and frustrations, and also to share idea's and best practices." This group was formed on November 4, 2004 and had 1 member as of December 17, 2004. Ehlers Danlos Teen Club - "Hi, this is a place for teens with Ehlers Danlos syndrome to talk about their problems. I have EDS type 3, and I'm here for advice or a chat any time!! please feel free to leave any messages and ill get back to you!!" This group was formed on October 15, 2000 and had 6 members as of December 17, 2004. Groups for ParentsCEDA Parents - "Parents talking about EDS and how it affects their children." This group was formed on March 1, 2001 and had 36 members as of July 20, 2004. EDS and Children - "If you have a child that suffers from EDS Ehlers-Danlos Syndrome This is the group to join." This group was formed on March 15, 2001 and had 17 members as of July 20, 2004. Our Little Ones Suffering with EDS - "If you have a child that suffers from EDS Ehlers-Danlos Syndrome This is the group to join." This group was formed on March 15, 2001 and had 14 members as of July 20, 2004. EDS Raising Children Suffering with EDS - "If you have a child that suffers from EDS Ehlers-Danlos Syndrome." This group was formed on March 15, 2001 and had 30 members as of July 20, 2004. Parenting Chronically Ill Kids - "To lend support, encouragement, experience to parents of special children coping with long term serious chronic illness, including but not limited to rare disorders or syndromes, intestinal disorders, asthma, autoimmune disorders, chronic orthopedic problems, brittle bone disorders, Ehlers-Danlos, tube or IV fed etc..." This group was formed on January 22, 2004 and had 8 members as of July 20, 2004. Groups for Spouses of People with EDSCEDA Support - "This is a list for those who do not have EDS, but are affected by it. This is a place to share with others, what you are going through and to exchange ideas, advice and methods of coping." This group was formed on March 1, 2001 and had 12 members as of July 20, 2004. Groups for Singles with EDSEDS Singles - "This is a group where single people suffering from the genetic condition Ehlers-Danlos Syndrome (a collagen disorder affecting 1 in 2500) can meet - as first suggested in the CEDA newsgroup here." This group was formed on July 26, 2004 and had 2 members as of July 28, 2004. Groups for Specific EDS TypesHypermobilityHypermobility Syndrome Talk - "Here to help and support people with painful & frustrating conditions such as HMS, EDS & FMS. Run by and for the sufferers out there in the world! This site supports the UK registered charity the HMSA We now offically have over 100 Members." Hypermobile - "This group is for everyone who has problems with hypermobile joints. This includes all types of connective tissue disorders; i.e. Ehlers-Danlos, Marfans, TMD, etc." This group was formed on September 6, 2001 and had 62 members as of July 20, 2004. Hypermobility UK and Aus - "This group is specifically for suffers of hypermobility living in the UK and Australia. Where there are few sites for us Brits and Aussies. Although Others are welcome to come and chat with us!!" This group was formed on June 24, 2004, and had 11 members as of July 20, 2004. Hypermobility - "Hello to you. Welcome to the Hypermobility support mailing list. Hypermobility is a problem with joints that can affect many people. This group is meant for people with HMS, EDS, Marfan's etc. Just join in and see what others with the same problems can mean to you! In the meantime, please join and take care. You can also post to a large board on the internet: go to http://marge.com/hypermobility and see what you can mean to others, or what you can learn from others." This group was formed on February 1, 1999, but moved to Yahoogroups on June 19, 2002. There were 140 members as of July 20, 2004. Hypermobility East Anglia Group - "This group supports and advises people who have hypermobility Syndrome, but we are not a talking shop, we would urge you to visit our website to give you more insight. http://www.heag.fabpage.com " This group was formed on June 29, 2003 and had 3 members as of July 20, 2004. Hypermobility East Anglia Group 2 - "This e-group is for people who have been diagnosed as having Hypermobility Syndrome, who live in East Anglia - and their family and carers. This is your forum for sharing tips on coping with hypermobility, and for discussing related topics. " This group was formed on October 19, 2003 and had 3 members as of December 17, 2004. Hypermobility Forum - a bulletin board for EDS questions and answers. Here you can post questions to the board and check back later to see if anyone has answered. You don't even have to have e-mail to access this list, just an internet connection. Lancashire Fletchers - "Discussion and Resources for the descendants and those who believe that they are descendants of the Fletcher family first recorded in Ightenhill Park, Burnley in the 1500s. This family carries the unusual characteristic of hypermobility-also known as double-jointedness. The hypermobility in this family has been diagnosed as that of the Ehlers-Danlos Syndrome (Hypermobility Type) . The earliest known family member with children who carried the genetic make-up for hypermobility is currently John Fletcher who was born in 1737 and who married Mary Whitaker in 1759. Whether the genotype for hypermobility came from John or Mary is not yet known." This group was formed on January 29, 2003 and had 6 members as of July 20, 2004. alt.support.hypermobility. This newsgroup has a few members, and very little activity. Hypermobility UK Only - This is a pointer to a UK only Joint Hypermobility Syndrome (JHS or HMS)Support Group. This group was formed on May 5, 2004 and had 3 members as of December 17, 2004. ClassicalThere are no groups for this category. If you have a group to add, please email EDS Today.Return to Top.VascularVEDS - Vascular EDS Support Group. This group was formed on April 13, 2001 and had 72 members as of July 20, 2004. ArthrochalasiaThere are no groups for this category. If you have a group to add, please email EDS Today. Kyphoscoliosis
The Kyphosis
Club - "This is a place for people of all ages (infants through
adulthood) with kyphosis and kyphoscoliosis, with Scheuermann's or any other
related condition including those who have had some sort of spinal fusion
surgery, to talk about braces, surgery, and any other issues or questions
they may have about the disorder. This is a place also where you can
share your needs, gain support from others, and be encouraged toward what
kind of doctors to seek." This group was formed on April 24, 2001 and
had 114 members as of December 17, 2004. DermatosparaxisThere are no groups for this category. If you have a group to add, please email EDS Today. Groups for Specific RegionsUSAEDS USA - "Information and support for those suffering from or sharing a life with someone with Ehlers-Danlos Syndrome." This groups was formed on October 24, 2001 and had 9 members as of July 20, 2004. WA EDS - "Email list for members of the Washington EDS Support Group." This group was formed on September 17, 2002 and had 10 members as of July 20, 2004. Alabama Support Group - "The purpose of this group is to share and discuss Ehlers-Danlos syndrome, your frustrations, your pains , your awareness, or just the unknown. Support for each other to listen and talk with compassion and to do all we can to help each other. This is not strictly limited to Alabama residents, but I would like to hear from the residents of Alabama for the purpose of starting an Alabama support chapter. I'm in central Alabama, but everyone is welcome to join for the input or support.. thanks, Julie..." This group was formed on November 28, 2003 and had 5 members as of July 20, 2004. California EDS - "This is a semi-moderated group for people in California with all types of the connective tissue disorder Ehlers Danlos Syndrome (EDS) or those who want to learn more about it. This is a place to share information, ask and answer questions, provide support, and just chat." This groups was formed on July 2, 2004 and had 3 members as of July 20, 2004. EDS Philadelphia, PA Internet Support Group - "The Philadelphia,PA., Internet Support For Invisible/Hidden Disabilities goal is to offer all who visit this page to further gain insight into what is called an Invisible/Hidden Disability, feel free to contact me via the internet. I and other concerned members will assist you and your support network with the resources that I & others have and continue to build." AOL EDS Philadelphia, PA Email Group - "The EDS, Philadelphia Chapter goal is to offer all in need the emotional support, educational materials." Philadelphia EDS Support Group - "The Philadelphia based Ehlers-Danlos Syndrome, Philadelphia Chapter goal is to offer its members and non-members the emotional support, educational materials and to serve as a vital link to the various communities in the City of Philadelphia, PA. We encourage all members of the City, State, Federal agencies, business leaders and the medical professionals to visit with us so they may have the opportunity to better understand the issues that face people with invisible / hidden disabilities. Our group meets on the third Tuesday of every month at Pennsylvania Hospital, located at 8th & Spruce Street, Philadelphia, PA. in the Chestin Conference from 7-9PM. Presently, our group has compiled A Service Guide for Invisible / Hidden Disabilities, which contains information on EDS and 334 links to valued resources and other agencies." This group was formed on January 14, 2003 and had 2 members as of July 20, 2004. Georgia EDNF Support Group - "Looselinks is the Georgia Ehlers-Danlos Support Group; a member of EDNF. The goal is to provide information and support to those with Ehlers-Danlos in the southeast part of the country. Anyone with EDS, family member of someone with EDS, or anyone interested in EDS is welcome." This group was formed on January 4, 2004 and had 18 members as of July 20, 2004. New York/New Jersey EDS and Hypermobility - "Support, Message and Discussion Center regarding topics including Ehlers-Danlos (EDS) and all other forms of Hypermobility (double-jointed / loose-jointed conditions), etc. specifically for people residing in the New York / New Jersey areas. Please feel free to discuss anything at all about your condition or anything else that may help people with Ehlers-Danlos syndrome and all other forms of Hypermobility (double-jointed / loose-jointed conditions), etc..." Nebraska EDNF - "This group is for members of The Eastern Nebraska Local Group of the Ehlers-Danlos National Foundation. The goal is to provide information and support to those with Ehlers-Danlos in the entire state of Nebraska and Western Iowa. Anyone with EDS, family member of someone with EDS, or anyone interested in EDS is welcome to join." Mid-Kansas Connections - "This is for members of the Ehlers Danlos Mid-Kansas Connections group to keep intouch and updated on group events." Kentucky EDS Support Group - "This Yahoo group was created for the members of the Kentucky Ehlers-Danlos Syndrome Support Group. Use it to introduce yourself and keep in contact with everyone even when you can't make it to meetings." OverseasCEDA Manitoba - "This is an update list for the Manitoba Branch of the Canadian Ehlers Danlos Association." This group was formed on October 29, 2002 and had 2 members as of July 20, 2004. Hypermobility East Anglia Group - "This group supports and advises people who have hypermobility Syndrome, but we are not a talking shop, we would urge you to visit our website to give you more insight. http://www.heag.fabpage.com " This group was formed on June 29, 2003 and had 3 members as of July 20, 2004. Aus-EDS - "A list for all Australian Ehlers-Danlos Syndrome sufferers....support, chat, info, get-togethers etc." This group was formed on February 18, 1999 and had 48 members as of July 20, 2004. EDS Espanol - "Un grupo para personas que viven con Ehlers-Danlos Sindrome." This group was formed on March 19, 2000 and had 29 members as of July 20, 2004.
CEDA French - "This is an
on-line support group for people living with EDS who speak French. "Chers
amis et amies francophones, Nous avons relancé, depuis la Belgique, le
développement de la liste Cedafrench et depuis quelques semaines, une
poignée d'entre nous échangent et communiquent à travers le superbe
système! Si certains connaissent l'anglais, d'autres ne le maîtrisent
malheureusement pas assez ou pas du tout pour venir grossir les rangs de
votre liste en anglais. Le développement et l'implantation d'une liste en
français nous paraît bien nécessaire et utile! Il y a des francophones un
peu partout dans le monde, concernés de près par le SED et qui
souhaiteraient échanger. Voudriez-vous nous rejoindre? Nous aurions bien
besoin de votre partage d'expériences, de vos savoirs, et de votre soutien
dans les bons et moins bons moments! A bientôt, sans doute sur la liste
Cedafrench, dont je vous rappelle l'adresse
http://groups.yahoo.com/group/cedafrench Denmark EDS - "Forum for danskere med Ehlers-Danlos syndrom." Support group for people living with EDS in Denmark. This group was formed on April 22, 1999 and had 86 members as of July 20, 2004. South Africa EDS - "This is home to people living in South Africa who have EDS, to help network, gain support and share issues with others living in this region who live with Ehlers-Danlos Syndrome." This group was formed on June 10, 2001 and had 11 members as of July 20, 2004. EDS-Sweden - "E-postkonferens (mailinglista) för oss med Ehlers-Danlos syndrom samt för anhöriga och sjukvårdspersonal. Här diskuterar vi denna binvävsdefekt och allt som den ställer till med. Maila mig gärna en presentation på samma gång som du anmäler dig här. Läs mer om listan på http://go.to/eds-sweden Välkommen! Only Swedish." This group was formed on August 21, 1999 and had 34 members as of July 20, 2004. EDS-Turk - "EDS (Ehlers-Danlos Sendromu)ile ilgilenenler icin bilgi/tecrube alis veris platformu." This group was formed on November 23, 2000 and had 6 members as of July 20, 2004. HMS-Platform - "HMSplatform is een open discussielijst over alles wat te maken heeft met hypermobiliteit en het hypermobiliteitssyndroom HMS. Bedoeld voor patienten, artsen, fysiotherapeuten, onderzoekers, journalisten en anderen die betrokken zijn bij HMS, aanverwante aandoeningen als bekkeninstabiliteit en EDS en/of de gevolgen hiervan voor deze groep chronische patienten." This group was formed on January 10, 2001 and had 65 members as of July 20, 2004. Netherland EDS - "To provide support to people living with Ehlers-Danlos Syndrome in The Netherlands." This group was formed on February 10, 2000 and had 10 members as of July 20, 2004. Hypermobility UK ONLY - "This is a UK specific support & advice group for people with Joint Hypermobility Syndrome. JHS (or HMS) is a genetic condition where joints are over flexible (lax) and cause pain. Surprisingly there are many hypermobile people in the world – we call them double jointed - but most have little or no pain (or they think that the pain they have is normal). This mailing list is for the much smaller subset who, due to their Hypermobility, suffer with considerable pain. This group is for them. This group is for Hypermobile people and their families who live in the UK and aims to allow us to share knowledge of help and support available in the UK. If you are not UK based a world group exists at: hypermobility. Thanks for looking." This group was formed on May 5, 2004 and had 6 members as of July 20, 2004. General SupportEhlersDanlosfriends - "This is group is only for people who have Ehlers~Danlos syndrom or for those who have a loved one with Ehlers ~Danlossyndrom" Joints Joint Forum - A new online bulletin board for people with hypermobility. CEDA List - "Welcome to the Canadian Ehlers-Danlos Associations' EDS listserv! This is a family and we discuss Ehlers-Danlos syndrome here, and all things related to EDS! You will find a great deal of information shared here, including personal experiences, non-medical advice, opinions, medical news, laughter, tears. This is a large group and we tackle all topics! We welcome with open arms, all new members and encourage you to join us and wave hello!" E-mail support group hosted by CEDA. This is a high-volume list with many caring, supportive people. If you need answers or support, this is the place to be. If your e-mail volume is restricted or your e-mail time is limited, this is not an appropriate list. This group was formed on December 15, 1999 at Topica, but moved to yahoogroups on June 10, 2000 and had 451 members as of July 20, 2004. EDSERS - "This is a semi-moderated group for people with EDS (Ehlers-Danlos Syndrome) and folks interested in learning more about it. Topics include living with EDS, finding medical assistance, coping strategies, pain relief, alternative health care, and other EDS-related stuff." This group was formed on April 25, 1999 and had 213 as of July 20, 2004. Ehlers-Danlos-Syndrome - "Welcome to the International Rare Disease Support Network support group for people affected by "Ehlers-Danlos Syndrome." This group is open to anyone interested in sharing information and/or support with others affected by this rare "orphan" disorder. Affected persons, family members, friends, medical professionals and rare disease researchers are all encouraged to join." This group was formed on December 12, 1999 and had 124 members as of July 20, 2004. EDS Researchers - "Individuals researching Ehlers-Danlos to find answers to various complaints of those who have been diagnosed or suspected to have Ehlers-Danlos Syndrome. Databases contain logs of complaints to help locate their causes. Since other teams are needing help to start down the path to an answer we are hoping to lead the way. Come join us in our journey for the answers to our many unanswered questions! If you run across a website that interests you please post it to the bookmarks." This groups was formed on August 14, 2001 and had 45 members as of July 20, 2004. EDS Meetup - A forum for people with EDS to plan meetings. This group had 55 members as of July 20, 2004. Ehlers-Danlos Support Club - "This club is for those who have Ehlers-Danlos syndrome. An inherited connective tissue disease. Come and join us for support." This is a low-volume list. It was formed on February 29, 2000 and had 51 members as of July 20, 2004. Ehler Danlos Syndrome - "This is a group where people with Ehlers-Danlos Syndrome can get together and discuss the aspect and learn more about this syndrome. I know it is very rare and this is something my son has been diagnosed with and I would really appreciate learning all I can to help him and hopefully help others with this same syndrome if you have this syndrome or a loved one or friend and you want to learn more please join here." This group was formed on May 4, 2001 and had 34 members as of July 20, 2004. EDS Warfare Christians - "This is the only place where Christians can come and share their symptoms, pains and sufferings of Ehler's Danlos Syndrome. With the mentality of Warring in the Heavenly's through prayer and edification. For we wrestle not against flesh and blood, but against the rulers of the darkness of this world, against spiritual wickedness in high places. (Eph 6:12) A safe place to share our concerns, struggles, symptoms, wisdom, knowledge of EDS in agreement of faith and love in The Father, Jesus and Holy Spirit. Poetry/Devotions welcome." This group was formed on August 22, 2000 and had 16 members as of July 20, 2004. Ehlers Angel - "Support and Help Ideas for people with Ehlers-Danlos and families". This group was formed on April 3, 2001 and had 10 members as of July 20, 2004. Ehlers Angel 2 - "A place to talk about Ehlers-Danlos, get Support, feedback, helpful hints, or just plain vent your frustrations." This group was formed on April 11, 2001 and had 6 members as of July 20, 2004. EDS Prayer Circle - "This group is for those who live with Ehlers Danlos Syndrome and who believe in the power of prayer as a measure of support. Here, we respond to prayer requests for our EDS friends and form a prayer circle for those in need." This group was formed on May 7, 2004 and had 10 members as of July 20, 2004. Support Group Bulletin Board - A message center for local support groups to announce meetings and events. Healthlink Forum "E" - A place to address and discuss specific health questions and exchange information with others. Groups for EDS Associated with Other ConditionsEDS and FibromyalgiaEDS-FMS - an e-mail support list for Hypermobility and Fibromyalgia hosted by the Hypermobility and Fibromyalgia Site. This group was formed on March 11, 2000 and had 258 members as of July 20, 2004. FMS, HMS, and CFS - A group for people suffering Fibromyalgia, Hypermobility and/or Chronic Fatigue Syndrome or a combination of any of the three conditions. This group was formed on January 31, 2004 and had 45 members as of July 20, 2004. Moms With Fibro - "This is place to vent, let your hair down, hang out and connect with other moms experiencing this awful disorder we are stuck with. This is a place to share hopes, dreams, problems and experiences. If in the need of a shoulder to cry on, prayer, or just a good laugh to forget troubles this is the place to come. So grab a drink and have some fun." This groups was formed on November 6, 2003 and had 26 members as of July 20, 2004. Pelvic PainHartley Pelvic Pain and Hypermobility. This group was formed on October 7, 2001 and had 10 members as of July 20, 2004. EDS and Weight LossArthritis Dieters - A group for people with Arthritis or EDS who are trying to lose weight. This group was formed on January 6, 2002 and had 70 members as of July 20, 2004. EDS and ChiariCMNewYork - "This group is to discuss people who have Chiari Malformation and also suffering from Ehlers Danlos and/or Tethered Cord in New York State area. I started this group because I want to raise awareness and funds (all procedes will go directly to The Chiari Institute @ North Shore Hospital) for Chiarians and also hopefully to start a group that could get together once in a while. I find that it hard to speak to someone who doesn't know what all this is about, so finding people I can relate to would be a release. Please offer suggestions as you can. The group is open to anyone suffering from ACM and their family, friends, carers etc ..as well as anyone interested in finding out more about the disorder." ACM EDS TSC - "This group is to address the special needs and concerns of Chiarians also suffering from Ehlers Danlos and/or Tethered Cord in an environment that encourages open discussion amd understading. This site is under continual construction. I will be adding links to publications, educational sites, and support groups as I can. Please offer suggestion as you can."
Chiari Connection International - "Chiari Connection
International (CCI) was created for those who suffer from Arnold Chiari
Malformation and related disorders. Related disorders can include:
syringomyelia (SM); basilar invagination (BI); cranio-spinal instability
(CSI); intracranial and intraspinal cysts; tumors of the cerebellum, brain
stem and spinal cord; spina bifida (SB); hydrocephalus; pseudotumor cerebri
(PTC); Ehlers Danlos Syndrome (EDS); and various connective tissue
disorders. And possibly some not yet even discovered! Groups About Specific Therapies for EDSEDS Alternative Health - "With Ehlers-Danlos Syndrome, being a genetic disorder there is no known cure, and limited successful treatment for relief of suffering. I myself have EDS Classical Type with some vascular trouble, I know all to well the suffering that goes along with this condition. I want this to be a place where you can come and explore the many avenues of alternative health. I myself have used the Reliv Products, which reduced my pain in my joints 85% my digestion increased by 100%, sleeping position (pain shooting down my legs gone). I have since found that the use of Aloe Vera juice has corrected the Chronic Constipation in my little edser Paris age 6.5yrs in just 1 week’s time. Since June of 03, I have been using Therapeutic Grade Essential Oils by Young Living along with the Energy Wellness Machine. (Rife Technology) Lavender has stopped my insomnia knocks me right out! I am not talking about just any oils they MUST be “Therapeutic Grade Essential Oils” I have so much to share about what the oils are doing for me and how the machine is working wonders for me." This group was formed on October 17, 2001 and had 17 members as of July 20, 2004 EDS Alternative Medicine - "True there is no cure for Ehlers-Danlos Syndrome, but the next best thing one can do is manage pain and symptoms. Learn about Health programs with Essential Oils and Supplements. Rediscover the amazing healing properties of essential oils the FDA tries so hard to keep a secret! More and more today people are turning to alternative medicine vs. prescriptions drugs, which only mask your symptoms not cure them. Step inside & learn about the therapeutic value of essential oils how they can work for you and your family. Essential oils, and herbs are a Godsend to the world and will ultimately alleviate more pain and suffering than all of the medical garbage out there. Learn about how raindrop therapy can help you as well as other techniques like Vita Flex, Emotional response with essential oils, Essential waters, Dietary supplements with essential oils, oral hygiene, create your own massage oils, bar soaps, bath gels, cleansing and digestion, Matol products, and more." This group was created on October 8, 2003 and had 1 members as of July 20, 2004. Groups Aimed at Promoting Awareness of EDSEDS Awareness Campaign - A group designed for planning the events for EDS Awareness Month, to be held every February. This group was formed on October 21, 2001 and had 73 members as of July 20, 2004. Raising Awareness of Hypermobility Syndrome - "Hiya Everyone! Welcome to my website! This website is for people with Hypermobility Syndrome and also for other people who don't have Hypermobility Syndrome to help raise awareness and to support those with HMS. If you have any ideas for the website or would like to help me with the website and become an assistant manager then please email me at madthing2001@hotmail.com I hope to do more work on the website and get it used more. Thankyou everybody! *Painfree hugs* From em xxxx" There were 22 members as of July 20, 2003. |
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