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Mike Uggen's Book Recommendations for People with EDS

Michael W. Uggen, LMP is a licensed massage practitioner with advanced training in numerous massage modalities and energy techniques.  He is a regular participant on the CEDA EDS Email list and has Hypermobile type EDS himself.  As requested by the members of the CEDA list, Mike has compiled a list of books he believes people with EDS should have. 

Mike also has his own website. 

Click here for Mike's column on Massage Therapy for EDS
 

Michael W. Uggen, LMP

The views and opinions expressed here are those of the author and are not to be construed as an endorsement by EDS Today. Always consult your physician before trying any alternative therapy option.

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Recommended Book List

There are some books that I feel every one of you should have, period.  There are others that I recommend for specific situations or conditions.  And there are still others that I am going to recommend as good ones to have for reference or general background.

Word of warning right up front - this is a long posting.  I am not comfortable with just slapping together a list with nothing on it but titles, authors and current retail prices.  In addition to the actual list on the left, I am giving varying levels of review on my specific recommendations.  I am not just making recommendations - I am telling you WHY I am making them.  If you don't feel like wading through the verbiage, just use the Quick Links to jump to a particular section.  But I don't recommend that you do that because I tossed in some side discussions on things along the way.

With two exceptions, they are ALL books that I own personally, use and can endorse with comfort.  And in many cases the titles will be familiar to some of you because I have used them to address questions on the CEDA list. 

Any purchases made through the links on this site will automatically generate a commission from Amazon to EDS Today.  For those of you familiar with EDS Today, you already know that they are doing an outstanding job.  This is one way you can help them raise necessary operating funds and I urge you to consider doing it that way.  As info, just in working up this recommendation list, I tumbled on to four books through Amazon myself that I just couldn't live without and HAD to have in my library.  I ordered them through EDS Today myself.  At least one of them has broad potential significance for the list.  After I get it and if my expectations pan out, I will do a separate review and add it to my list.

Book Comments
The number one book on my recommendation list, bar none, is a fairly current copy of the Physician's Desk Reference.  This is the bible for finding out for yourself what your Doctor or Pharmacist fails to tell you about the meds you are taking.  The level of detail far surpasses any information sheet you are going to be given by either of them.  Amazon sells them new for about $93 or used for about $35.  I have also been able to find brand new, unopened, boxed copies of the previous edition at Half Price books for about $20.  For the most part, a copy within the last couple of years is adequate.  The exception is if you are taking a recently released medication that might not be listed in an older edition.  But everything I have read is that you would be well advised to not take anything until it has been on the open market for at least six months to a year, and preferably two years, to give enough time to shake out any adverse side effects.

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A second choice would be "Drug Facts and Comparisons." The 2004 edition runs about $69 new or $60 used for the paperbook version. The hardcover version runs $205 new or $125 used. Amazon also lists an abridged 2003 edition for as little as $6. This is similar in format to the PDR. I have copies of both and prefer the PDR. But whichever I am using, I have them to have access to the full, detailed information. An abridged version seems to be defeating the purpose. Either they are leaving a lot of drugs out, or a lot of information on the drugs they do list.

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The second most critical book would be a good drug interaction guide.  This is important because drugs interact with more than each other.  They also interact with foods, herbs, and nutritional supplements.  You can also get distinctly different results depending on the time of day you take the medications.  This is sometimes observed and noted in the clinical trials prior to approval and release by the FDA.  What they generally fail to take into account, however, is that this is one of the underlying principles of traditional Chinese medicine.  Each of the meridians has a high and a low point in a 24 hour cycle, 12 hours apart.  Chinese medicine uses this cycle partly as a diagnostic tool (what is the body doing at different times of the day) and in treatment.  As an example, if there is a deficiency in the Kidney meridian, treatment would suggest that actions to strengthen that meridian would be most effective when that meridian was at its most active time.

Two books that I particularly like are by the same author: H. Winter Griffith, M.D.  One is "Complete Guide to Prescription and Non-Prescription Drugs."  The other is "Complete Guide to Vitamins, Minerals and Supplements."  These run about $18 new to as little as $1 used through Amazon.  They don't give the detail about the drugs that the PDR does, but they have a superior section covering interactions with other drugs or substances. 

Two others that I am going to mention are "Dangerous Drug Interactions" by Teresa Graedon and the "Drug Interaction Fact Book 2004" by David S. Tatro.  I do not have either of these in my possession so am going to withhold comment other than mentioning them.  I will have them soon, however, since these are two of the
four I ordered.  After I get a chance to look at them, I will make comments as appropriate in a later post.

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If you are fortunate, all of your doctors will treat you with respect and fully answer all of your questions in language easy for you to understand.  But if you are like most of us, you will run into one who does not give you all the information you need.  For those situations, there are some reference books that are handy to have around.

One is "Complete Guide to Symptoms, Illness and Injury," also by H. Winter Griffith. 

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Another good one is "The American Medical Association Encyclopedia of Medicine."  There are others out there, in fact several different ones.  The main point is that you should have a GOOD general medical reference on hand for quick review as well as a good First Aid manual. 

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Considering the wide range of symptoms and complications presented by EDS, I would recommend both a good anatomy book and one covering kinesiology.   There are numerous books on anatomy - too many to list - but three of the best are ones used in Med schools.  These are "Clementine's", "Grants Dissector" and Netter's "Atlas of Human Anatomy."  I have copies of both Grant's and Netter.  I don't have Clementine only because I don't need all three.  Of the three, I have read the best reviews about Netter and do prefer it over the others.  But any of them are good.

The difference between an anatomy book and one on kinesiology is that the anatomy book just shows you the diagrams and pictures of the various organs, bones, muscles, nerves, vessels, etc.  A kinesiology book is going to give you similar information (but not in the same detail), but will take it a step beyond by explaining how the muscles, ligaments and tendons function to allow the body to move.  How many of you in the past have been told something like "you have a rotator cuff problem" without at the same time being told exactly what the rotator cuff is, what it does, and how it functions?  Just as with anatomy, there are too many kinesiology books to list.   The one I personally use is the one we had in school "Trail Guide to the Body" by Andrew Biel.  Aside from the fact that it was a required text and I would have it for no other reason, it is very well written with excellent illustrations.  It does a good job of explaining how the various muscles, etc. function.  There are Editions 1 and 2 available. Edition 2 has superior illustrations.

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Now on to some specific areas.

I am going to start with acupressure only because there has been quite a bit of recent list activity on it.  Hands down, my number one choice is "Acupressure's Potent Points" by Michael Reed Gach.  I do not recommend this one just because I happen to be familiar with it.  I have over two dozen books in my library on acupuncture and acupressure.  If I could only have one, this would be it.  It is detailed, well written, with excellent illustrations and photos for point location, and is user friendly.  It is not all encompassing.  I have other books that list different points for the same conditions, or address conditions that Gach doesn't cover.  I also have a copy of "A Manual of Acupuncture" by Peter Deadman which is considered to be the most detailed, thorough book in English on the subject ever written.  But if I had to make a choice, I would still go with Gach if I could only have one.  I think that highly of it.

Gach is the book that opened my eyes to other realities and started me down the energy trail.  My introduction to acupressure was self-taught using Gach.  Once I started getting results with it, I had what can best be described as an epiphany " a sudden flash of recognition." Basically, on a sliding scale of Eastern tradition, if acupressure clearly worked and I could accept the reality of that, how could I then reject out of hand everything else that went with it?  Once I made that mental leap, all kinds of interesting things started to happen with my "bodywork."

At any rate, Gach is my first choice, but I am going to mention two others as well.  The first is "Tsubo - Vital Points for Oriental Therapy" by Katsusuke Serizawa.  The other is "Jin Shin Do - Way of Health" by Iona Teequarden.  The Tsubo book is also a good introductory level text.  It compliments Gach very well in that Serizawa often lists conditions that Gach doesn't or other points for similar conditions.  He also gets just a bit deeper into some of the underlying basis or principles of acupressure than Gach.  Gach is more of a straight technical manual where Serizawa combines more theory with the basic techniques. 

The Jin Shin Do book takes it all to an entirely different level.  I can best describe it as an introductory text for advanced acupressure.  It starts at a level where Gach and Serizawa leave off.  I do not mean that it is so far beyond the other two that someone can't just start with it because they can.  But the approach is different and there is considerably more theory involved.  Probably the biggest difference is in how the points are actually manipulated.  Gach and Serizawa focus on individual points.  They may list several points for treating a specific condition, but the focus is working the points individually.  With Jin Shin Do, we ALWAYS work two points simultaneously.  The other critical distinction is that Jin Shin Do not only recognizes but uses what are known as the Eight Extraordinary Vessels or Meridians.  Most texts just refer to the standard 14 meridians.  There are 12 paired meridians in that they are on both sides of the body:  Lung, Large Intestine, Spleen, Triple Warmer, Stomach, Small Intestine, Heart, Kidney, Pericardium, Bladder, Gall Bladder and Liver.  There are two others, one on the front of the body (Conception Vessel) and one on the back (Governing Vessel).  These two basically run up and down the center line of the body.  The Extraordinary Vessels interact with all of the other meridians.  Like I said, most texts just ignore them but they are one of the key elements of Jin Shin Do that in my opinion makes it so incredibly effective.

While I am on a discussion of acupressure - any of you know anybody with body piercings?  Such as naval, lip or tongue studs?  Studs that just happen to be on the body's mid-line?  Anybody who just might be having difficulties with undiagnosed complaints?  Well, those studs are typically put right smack into the Conception Vessel and it quite commonly messes up their energetics.  Have them take the studs out for a couple of days and see what happens.  The recommendation I have been told by instructors is that if people are going to insist on getting them, they should at least try to get them positioned slightly off-center.

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A couple of conditions that seem to arise with all too much regularity along with EDS are Fibromyalgia and Chronic Pain Syndrome.  The best book I know on the subject is "Fibromyalgia and Chronic Myofascial Pain Syndrome" by Devin Starlanyl and Mary Ellen Copeland.  Starlanyl is not only a doctor, she has Fibromyalgia herself.  This has Editions 1 and 2 also.  Both are good but 2 has a lot more in it.  The other one I recommend is "Fibromyalgia and Muscle Pain" by Leon Chaitow.  He is a Naturopath and Osteopath, practicing in the UK.  He is also one of the most highly respected professionals in the entire field of bodywork and alternative/complimentary therapies.

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I also see repeated references to Scoliosis.  An excellent book that discusses causes and treatments is "Scoliosis Diagnosis and Management" by Rene Caillet. 

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For Carpal Tunnel Syndrome, I would recommend "Conquering Carpal Tunnel Syndrome" by Sharon Butler.

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You keep hearing terms like Myofascial Pain as a condition or Myofascial Release as a treatment modality.  If you want to learn more about what fascia actually is, what it does, and how it affects the body, I highly recommend "The Endless Web" by Louis Schultz and Rosemary Feitis.  Without going into a lot of detail here, I will simply say that fascia IS the body's connective tissue.  It can vary in texture from clear, almost watery, over the eyes to solid gristle at the low back where it forms the Thoracolumbar Aponeurosis.  It is the tissue that becomes a tendon at the end of the muscle.  It interweaves and wraps every organ, fiber and cell in the body in one continuous sheet and ultimately is the tissue by which we are able to stand upright.  Without it, our skeletons would just collapse in a jumbled heap on the floor.  Current research also suggests that it is the carrier for the traditional Chinese energy meridians.

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From a bodywork modality/treatment perspective, there are a couple that I find particularly useful.  I have quoted passages from both from time to time for list postings.  One is "A Massage Therapist's Guide to Pathology" by Ruth Werner.  The other is "Massage Therapy - An Approach to Treatments" by Fiona Rattrary.

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And finally, I would like to add one specifically on energy work.  For Western trained and oriented minds, this can be a difficult concept to understand or accept.  To an unfortunate degree, there will always be those skeptics who will remain unconvinced, regardless of the body of evidence or scientific research that supports and validates the reality.  And believe me, the research has been done and there is more than ample scientific evidence out there.  The absolute best book that discusses that research and explains the underlying SCIENCE for energy work and WHY it works is "Energy Medicine - The Scientific Basis" by James Oschman.  It is fascinating reading.

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Mike's Book List: Licensed Massage Practitioner, Mike Uggen has compiled a list of books for people with EDS.
 
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